LD Connect Registry


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Accelerate disease research

By registering, your information will be used to move forward research and clinical trials that could lead to future treatments and cures for all types of Lipodystrophy.


Register Now!

Registry Updates

Get information on the latest registry-related news, including ongoing efforts to advance research and increase the quality of life of people living with Lipodystrophy.

Resources

Find resources to support you and your family members living with Lipodystrophy. Access information on diagnosis and treatment, connect with online support resources, and more.

Professionals

Researchers, clinicians and other professionals can access de-identified aggregate data in this patient-driven registry to identify target populations for trial/study planning or recruitment. Professionals can also contact the registry coordinator to communicate with registrants on your behalf regarding potential candidacy for clinical trials and research studies.

Explore the Data

Remember, this is your registry and you’re in charge of the information in it. Check out how to explore the information you and others have provided to learn more about Lipodystrophy. Log into your account today and start exploring the data.

Download the Registry Brochure

Help to promote the importance of participating by downloading this informational brochure and providing to qualified participants. English and Spanish versions are available.