Registration & Consent
* This Field is required Required field | Information for: ? : Field description: Move mouse over icon Information: Point mouse to icon

Create Professional Account

Professionals, advocacy representatives and other users with a scientific or research interest in lipodystrophy can create an account on the LD Connect Professional Portal. Once your account is approved, you will have access to the de-identified data from LD Connect participants. Contact the LD Connect registry coordinator at coordinator@ldconnect.org for custom reports and other partnership opportunities.

First Name:
* This Field is required
Last Name:
* This Field is required
Email:
* This Field is required Information for: Email : Please enter a valid e-mail address. A confirmation email will be sent to this address upon registration. * This Field is required Information for: Verify Email : Please enter a valid e-mail address. A confirmation email will be sent to this address upon registration.
Username:
* This Field is required Information for: Username : Please enter a valid username.  No spaces, at least 3 characters and contain 0-9,a-z,A-Z
Password:
* This Field is required Information for: Password : Please enter a valid password.  No spaces, at least 6 characters and contain lower and upper-case letters, numbers and special signs * This Field is required Information for: Verify Password : Please enter a valid password.  No spaces, at least 6 characters and contain lower and upper-case letters, numbers and special signs
Organization Name:
Organization Type:
Title/Occupation:
Address:
* This Field is required
Address 2:
Address 3:
City:
* This Field is required
State:
Zipcode:
* This Field is required
Country:
Phone:
* This Field is required
Degrees:
If Other selected:
Access Purpose:

LD Connect and Medical Research

A key goal of the LD Connect Registry is to assist clinicians, pharmaceutical companies and researchers in developing new clinical trials and studies for lipodystrophy. Through LD Connect, study investigators can better understand the characteristics of those with LD needed for study planning or recruitment.

Understanding Registry Data and Curation

De-identified data gathered from self-report survey data is made available to the LD Connect community of registered participants, families, medical care providers and researchers, in the hope that this data will support breakthroughs and expedite clinical trials that could lead to better treatments and care management.

The registry data accessible through this portal will include all curated and uncurateddata. Uncurateddata is provided as it was entered, with all faults. Specific details of curation can be discussed with the LD Connect registry.

Terms of Use

  • Agree that the ability to access and search de-identified information in the registry database is for your internal research or business use only.
  • Agree that all Invitae generated content available at LD Connect is owned by Invitae and all Patient Data is owned by the registry participant.
  • You agree not to sell, publish, present or transfer the unaltered Patient Data to any third party or for any commercial purpose.
  • You agree to seek the written permission of Invitae prior to any publication or presentation of secondary analyses of the Patient Data.
  • You agree to clearly attribute Invitae Corporation and the LD Connect in any research papers or other publications which make use of any Patient Data.
  • You agree to acknowledge the patient advocacy organization(s) involved with LD Connect in any research papers or other publications which make use of any Patient Data.

* This Field is required
I agree to the Terms and Conditions
* This Field is required
I agree to the Data Access and Publication Policy

Please enter the code below

Image with security code embedded in itclick here to hear the letters

* This Field is required Information for: Security Code: : Enter Security Code from image. If no image is present then try disabling your advertisement blocker and then refresh this page. Otherwise please contact the website administrator for assistance.